Liv(er)ing Proof

Getting to Stage 4 (Coming soon ... )

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Intro

In 2015 I was fortunate enough to receive a liver transplant at Indiana University Hospital. My name is Philip, and I and many others can say that we are "livering proof" that the organ donation system does and can work for anyone, all due to the thoughtfulness of just one person, the organ donor. If you want to know more about what it is like to get a organ transplant in general or at University Hospital in particular, this is a place to discover more from one patient's perspective.

Featured Post

LINKS TO LIVER BY!

What I've Learned

  • The "Transplant Bible" (Post-Organ-Transplant Manuals)
  • Immune Suppressants, Anyone?
  • Don't do's
  • Getting to Stage 4 (Coming soon ... )

I Tweet, am Pinterest-ed, & Other Things, Too

  • The Drive to Donate (Pinterest)
  • Transplanted! (Pinterest)
  • Organ Nation (Pinterest)
  • Transplant Tech (Pinterest)
  • Transplant Stories (Twitter)

About IU Health Transplant

  • IU Health University Hospital Transplant (Kidney, Liver, Pancreas, & Multi-visceral)
  • IU Health University Hospital Department of Surgery
  • IU Health Methodist Hospital Transplant (Heart & Lung)
  • IU Health Simon Cancer Center Bone Marrow & Stem Cell Transplant
  • IU Health Riley Children's Hospital Transplant
  • Post Transplant Management
  • IU Health Transplant Videos & Education (Post-transplant) Manuals (for transplant recipients at IU)
  • IU Health's Health Encyclopedia (Search for your health issue)
  • IU Health's Drug Reference Library (Look for drug effects & interactions)
  • IU Health Transplant (Facebook)
  • Indiana Transplant Forum (for transplant candidates & recipients at IU Health)

The Many Paths to Stage 4

  • Alpha-1 Antitrypsin Deficiency (Alpha-1)
  • Hepatitis C (and A & B) (Hepatitis C Association)
  • Liver Disease (American Association for the Study of Liver Diseases)
  • Primary Biliary Cirrhosis (PBCers Organization)
  • Primary Sclerosing Cholangitis (PSC Partners Seeking a Cure)

Getting Educated about Your Health . . . or What Is Left of It!

  • WebMD.com
  • MedlinePlus.gov
  • CDC.gov (Centers for Disease Control and Prevention)
  • Medicinenet.com
  • EverydayHealth.com
  • HealthLine.com
  • EMedicineHealth.com
  • Merck Manuals (merckmanuals.com)
  • Mayo Clinic
  • Cleveland Clinic
  • Johns Hopkins Hospital
  • University of Pittsburgh (The Official Dr. Thomas E. Starzl Website (Dr. Starzl was a pioneer in liver transplants, having performed the first in 1963))
  • HowStuffWorks.com (MRIs, CT scans, & livers, too)
  • SurgeryEncyclopedia.com (Learn about surgical procedures you may need)
  • LabTestsOnline.org (Learn all about what they are doing with your blood and urine)
  • Drugs.com
  • Patient.info (A site for those in the UK, but I find their English to be a bit more direct and understandable)

Support for Organ Recipients

  • TransplantLiving.org (UNOS)
  • TransplantBuddies.org
  • TransplantFriends.com
  • International Transplant Nurses Society
  • National Foundation for Transplants (Transplants.org)
  • The Transplant Cafe (TransplantCafe.org)
  • Kidney Buzz (KidneyBuzz.com)

Donor Advocacy & Resources

  • Organ donation: Don't let these myths confuse you (Mayo Clinic)
  • OrganDonor.gov
  • Organ Procurement and Transplantation Network (OPTN)
  • Donate Life America (Register now to donate later!)
  • Indiana Donor Network (IndianaDonorNetwork.org)
  • The Gift of a Lifetime: Organ & Tissue Transplantation in America (OrganTransplants.org)
  • Explore Transplant and Living Donation (ExploreTransplant.org)
  • ORGANize (Organize.org)
  • Waitlist Zero (WaitlistZero.org)
  • BetheMatch.org (PBSC & Bone Marrow Donation)
  • Living Donation California (LivingDonationCalifornia.org)
  • Eye Bank Association of America (RestoreSight.org)
  • Scientific Registry of Transplant Recipients (SRTR)
  • International Registry in Organ Donation and Transplantation (IRODaT)
  • Organ Donation Wales (UK)
  • An international comparison of deceased and living organ donation/transplant rates in opt-in and opt-out systems: a panel study (Sept. 24, 2014)

About Organ Transplantation

  • The Transplantation Society (TTS.org)
  • Transplantation: Official Journal of the Transplantation Society & International Liver Transplantation Society

Vital ORGANizations

  • American Liver Foundation (US)
  • National Kidney Organization (US)
  • American Heart Association (US)
  • American Lung Association (US)
  • National Pancreas Foundation (US)
  • National Institute of Diabetes and Digestive and Kidney Diseases (US)
  • Kidney Foundation of Canada
  • Heart & Stroke Foundation (CA)
  • Canadian Liver Foundation (CA)
  • The Lung Association (CA)
  • British Liver Trust (UK)
  • Kidney Patients UK (UK)
  • British Heart Foundation (UK)
  • British Lung Foundation (UK)
  • Australian Liver Foundation (AUS)
  • Kidney Health Australia (AU)
  • Heart Foundation (AU)
  • Lung Foundation Australia (AU)

How to Donate around the World

  • Australia
  • Canada (Ontario)
  • Ireland
  • New Zealand
  • South Africa
  • United Kingdom

Facebook Links to Liver By

  • Organdonor.gov
  • United Network for Organ Sharing (UNOS)
  • American Liver Foundation
  • Indiana Donor Network
  • Donate Life America
  • Donate Life Indiana
  • The Waiting List
  • Transplant Buddies Awareness
  • American Transplant Foundation
  • Transplant Information
  • Organ Donor Awareness
  • Gift of Life Donor Program
  • Gift of Hope Organ & Tissue Donor Network
  • Transplant Games of America
  • Donate Life Rose Parade Float
  • Make-A-Wish Ohio, Kentucky and Indiana
  • Midwest Transplant Network (Missouri)
  • Wanted: Kidney donor for Jenna
  • Transplantation at Mayo Clinic
  • UPMC & Donate Life: Living Donor Transplant
  • The Lung Transplant Foundation

Blog Archive

  • ▼  2019 (1)
    • ▼  September (1)
      • More Facebook Groups for Transplant Recipients, Do...
  • ►  2017 (3)
    • ►  May (1)
    • ►  April (1)
    • ►  January (1)
  • ►  2016 (1)
    • ►  August (1)

Labels

  • Cirrhosis (1)
  • Closed Group (1)
  • Colonoscopy (1)
  • Endoscopy (1)
  • Facebook (1)
  • Gall Bladder (1)
  • Group (1)
  • IU Hospital (1)
  • Liver (1)
  • Liver Biopsy (1)
  • Liversary (1)
  • NASH (1)
  • Organ Donor (1)
  • Organ Donor Family (1)
  • Organ Transplant Survivor (1)
  • OTU (1)
  • Pericentesis (1)
  • Pre-Transplant Patient (1)
  • Spleen (1)
  • TICU (1)
  • Transplant (1)
  • Transplant Community Outreach (1)
  • Transplant Recipient (1)
  • Transplantiversary (1)
  • University Hospital (1)
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